Thursday, August 20, 2015

Another Game of Uno


It was a weird sort of love.  I was eighteen, he was eleven – almost twelve, though.  I moved to his neighborhood to be with my parents after a first semester of college sent my health into a downward spiral.  While my friends were out taking classes and partying, my body made it clear that I could not even deal with the stress of classes, much less the typical freshman consumption of alcohol.  A week before my classes ended, I had to completely withdraw from all of them.  What a massive waste of time.  

So, a couple days after Christmas, I found myself in Cyprus.  “A Mediterranean island!” people would coo when I told them.  Turns out, a place with a beach can be just as frigid as winter in Siberia.  It made it worse that these Cypriots were under the impression that breathing in central heat and air was bad for you.  A space heater hummed faithfully by my bed every night in that house.

I had no friends.  The south side of the island was full of Greeks who absolutely despised the Turkish in the north, the side upon which I happened to live.  I mean, the Greeks were nice and all, but the way they talked about the Turks was a level of racism I had never before experienced*. It’s ignorant to believe America isn’t progressive in that arena.  It was a hassle crossing into the south, and I didn’t care to hear hateful conversations aimed at not only my neighbors, but Americans as well. (“You all are obsessed with McDonald’s right?  That’s why everyone is so fat?  Americans are so stupid!!” They would double over in hysterics as I stood there, neither overweight nor unintelligent, the antithesis of their vision of America right in front of them.  Coincidentally, many of them were dying to move to the U.S.)  So I stayed in the north. 
My home in Cyprus.  The interior was all marble, making the our hardly furnished house that much colder sans central heat.

When you have no friends, don’t speak the language, and are cooped up with your parents all day long, you’ll do anything to fend off raging boredom.  I roamed the streets of our little town.  Mostly, I ended up at a small restaurant my parents and I frequented together at least once a week: Gandil.

Gandil was run by a froggish man who stood less than five feet.  A native Turkish Cypriot, Ümit was well traveled and had lived in London and New York City.  He shouted orders to his two sweaty cooks and delivered the best shawarma.  He took me in and very much became a father-figure, giving me advice on who not to marry and how to get along in the Cypriot culture. 

While I was received with a warm welcome, Khalil was the annoying slum boy guilty of soliciting.  Ümit made it clear he was an annoyance, but I took to him.  He was one of those boys where, even at eleven, you had a good idea of just how handsome they’ll be in a few years.  

In high school, I applied to be a “Big Sister” – it was supposed to look good on college applications.  When the counselor asked what I was looking for in a potential “little sibling”, I said I wouldn’t mind a rambunctious boy.  She smirked when I said that.  “‘Rambunctious,’ huh?  Don’t hear that request a lot.”  I didn’t get a callback.

With Khalil, I found my rambunctious boy.  He was the oldest of three and had very little parent supervision.  When we first met, and he found out I spoke English, he wanted to try what he had learned in school. “Hello my name is,” he would say robotically, missing the part where he had to insert his name at the end of the sentence.  I never could teach him to end with “Khalil”. 

When I discovered he’d be little for conversation, I whipped out my deck of Uno cards – something I carried in my purse in Cyprus as it seemed to be so universal.  People understand colors and numbers.  I demonstrated to him the basics and we began playing.  Every time I laid down a green card, he laid down a mismatching color.  “Hayırnō,” I’d say, “no.  This card is yeşil!!”  He’d lay down another color, hoping that one would match.  The first few times he did this I thought he didn’t understand the premise of Uno, but quickly realized This kid is colorblind!  I kept using green cards anyway – he could always match the number if he had it.  It was dark –about ten o’clock—before he motioned that he had to go home. 

The next time I went to Ümit’s, Khalil was there, waiting for me.  He was skillfully bouncing a soccer ball from foot to foot.  He kicked it to me, but I quickly showed him I’m lousy athletically.   We went back to my deck of cards and so it began…our near-nightly Uno routine.  I’d whip out the cards and we’d play for hours.  My life became one continuous game of Uno, my enthusiastic opponent having a laughably unfair handicap.

At times, Ümit was my begrudging translator.  “Tell him I want him to come to America with me when I go back,” I said, only half-kidding.  After Ümit yelled my sentence in Turkish, Khalil’s eyes got big: he was mortified. 

“He doesn’t want to go,” Ümit informed me.

“And why not?!” I demanded. 

After listening to Khalil go on for a minute, Ümit told me something I hadn’t expected.  Khalil’s parents, devout Muslims, had taught him that America was a very awful, very ugly place—in his mind the opposite of everything Muslim and Turkish. He wouldn’t dare go to America when his parents had promised him that next summer, at the ripe age of twelve, he would be “allowed” to go to Turkey’s Hatay province alone to work and provide for the family.  With that, Khalil swiftly debunked my idea that the world’s poor dream of going to America.   

“What? America çok güzel!  It’s very beautiful,” I said, but Khalil shook his head in vigorous disbelief.  I pulled out my dad’s iPad and showed him a picture I had taken once back at home.  It was spring.  The Bradford pears lining the street were in full bloom: beautiful white flowers on the branches contrasting the emerland green grass below and the clear, blue sky above. 

“Ahmehreekah?” he said, pointing to the picture.  I nodded.  “Oh, yes, çok güzel!” Now, he was surprised.  America was supposed to a desolate land of anti-Islamists.

Even so, I couldn’t convince him to come back with me.  Every once in a while I asked him to reconsider.  I had an Angelina Jolie-esque vision of our American existance.  I’d take him under my wing in Kentucky. Luckily, our public schools had great ESL programs and a lot of other foreign kids.  With his looks and athleticism, he’d fit in from the get-go.  The soccer team would be lucky to have him.  We’d live at my parents’ house and I’d  simultaneously mother and sister him while providing him an opportunity for a better future.

I so badly wanted this boy to have a chance: a chance to not become another drag-racing, overly gelled Turkish boy; a chance not to become the hoodlum Ümit knew he’d be in a few years; a chance to rise above the poverty he was born into and likely to stay in.  I so badly wanted the purpose Khalil gave me.

It was not to be.  Five months after our bizarre friendship began, I was on my plane, unaccompanied.   Right before I left, I had Ümit tell him I was leaving with no definite return.   

When I went to Gandil to say my goodbyes, Khalil was in the corner of the restaurant, hiding his sadness only a little better than I was.  I pulled a brand new deck of Uno cards out of my purse – a gift I wanted to give him so he wouldn’t soon forget our bond.  When he realized it was for him, he held his hands up at me and shook his head. 
 
“Hayır, no,” he said.

“Are you kidding?  Why not??” I asked, perplexed.  He loved this game.  Khalil gave his explanation to Ümit.

“Eh, his parents, they don’t allow him to play cards.  Religious reasons.” Ümit scoffed.

“Well sheesh,” I said, “we’re not gambling here!”

Ümit gave me a resigned shrug.  He wasn’t much for religion.

It was comical. “The past five months he’s been playing the world’s most harmless game and he isn’t even allowed!” I wondered what he told his parents he’d been doing these past months after school, or if they’d even asked.  My rambunctious boy. 

Before I left the restaurant, I tried to leave the cards with him one last time, but, good Muslim boy that he was, he refused.  That was the last time I saw him.

Luckily for me, two years later I had a child of my own who gave me that purpose I so yearned for in Cyprus. 

To this day, I think about Khalil and what our lives would have been like together, as silly and improbable as my dream was.  Sadly, I was probably right that he’d be much better off had I whisked him away to the land of the free and the home of the brave.  He’s now fifteen and with the combination of his particular heritage, religion, and political upbringing, likely a zealous prospect for ISIS.  My eyes sting just thinking about it.

I’m hoping that one day, when I go back to Cyprus or Turkey, I’ll find him.  I pray that he will be a hard worker, overcoming the adversity in his life honestly.  I pray even harder that he won’t have given his life to a terrorist cause that is looking to take over the world, massacring anything in its way.  That would defy all odds, of course, but a girl can dream.  And I hope that when next we meet, we’ll play another round of Uno.  

Khalil and me in 2011.  Umit can be seen in the upper left-hand corner
The foreigner residing among you must be treated as your native-born.
Love them as yourself,
for you were foreigners living in the land of Egypt.
Leviticus 19:34

*I feel it's worthy to note, there is a very complicated history between the Greeks and Turks, explaining the hostility on both sides. Just Google it.

 

Tuesday, March 24, 2015

The Good-Looking Trooper


"You are such a trooper."  This is a phrase that's been directed at me throughout my life by many different people.  I guess it's meant as a compliment, but I've never been fond of it because of the implied pity that seems to accompany it.  I also find myself thinking, This person has no idea what I've been through.  

I will never forget when the disease made it's first appearance.  I was almost seven and, wherever I was, I wound up trapped on the toilet, for hours at times.  It was embarrassing, exhausting, and painful.  A diary entry from the time reads:

I wish I could sleep all the time because at least in my nightmares I don't have diarrhea.

After that first colonoscopy, the prep of which turned me off of Sprite forever, I was diagnosed with Crohn's.  For the next fourteen years, I lived in a state of near constant pain, weakness, and discomfort.  When concerned family friends with furrowed brows asked, "How are you feeling?" I replied with a smile and a curt, "I'm fine," knowing they would neither want to hear that bowel movements were coming out of all the wrong holes, nor did I want to admit how it took an enormous effort to leave the house, let alone stand up straight.

Another phrase I've heard a lot over the years is, "You look great!"  If they mean that I look beautiful that day, I will welcome the compliment with arms wide open.  If they say it to mean I seem healthy, I mumble an unappreciative "thanks" and change the subject.  You can always tell how a person means it.

Here's where the misconception lies.  Many autoimmune diseases, such as Crohn's, ravage the inside while oftentimes leaving little outward evidence.  I am young, I look fit, I'm not in a wheelchair, I'm not losing hair, I'm not disfigured.  What you don't see is how I feel like I'm about to fall over in the grocery from weakness; you don't see the pad I wore everyday to school to protect from that poop that never fails to come out too quickly; you don't see how at home I walked permanently hunched over because it hurts too much to stand up straight.  You don't see the recto-vaginal fistulas, you don't see the anal strictures.  Nor do I want you to, to be honest.

Please don't mistake all of this as complaining.  In order to make my point, however, you must know the ugly truths.

This past December, I had the biggest surgery of my life.  For eight hours, my abdomen was sliced open: a hernia was repaired, half of my small intestine was removed, and all of my colon along with its attachments (aka my rectum) were taken away and stitched up.  My ostomy is now permanent.

Smiling because I am on very heavy drugs
The day they removed my epidural, I had some close family friends visit.  I got up to use the bathroom, and the drains hanging from my nether regions tore at the skin, my abdomen felt like it was being slashed with a hundred knives, I couldn't breathe, much less walk.  I broke down.  I cried out in anguish in front of my guests, something I had been able to avoid for so many years of my life.  I was embarrassed, and I was mad that my pain was exposed in such a raw way.

The month following my discharge from the hospital was a blur of strong pain meds that could hardly take the edge off, a dangerously quick loss of 25 pounds that left me emaciated and weak, rendering walking and most other normal functions nigh impossible.  People asked about me, but were always so optimistic; and for the first time in my life, I was angry that no one understood how terrible it all was.  I felt cheated that strangers thought I was just some deadbeat anorexic who had her mother cart her child around for her. 

Now, three months later, I've made a lot of progress. I've gained back my weight and I eat a log of mozzarella every other day (a pricey, but fattening habit). I can get out of bed without nearly fainting, and last week I returned to work.  I still have a long way to go before I'm 100%, but I'm getting there.

All this to say, just because someone looks good, does not mean they're not battling something awful.  I praise God because most days I think I've endured the worst of it, and I'm closer to him because of it.  And perhaps if I'm more open about what I've been through, it will be a better witness for how God has worked in my life.

But for those silent sufferers who wish they could use the scooter in the grocery, but know they would be criticized because it doesn't look like they have a problem; for those whose problems are only apparent from blood tests and colonoscopies; for those who are still quietly ailing: I implore you to not assume their pain must not be so bad.  I ask you to give grace to those around you, especially strangers, because you truly never know what lies beneath the surface.  The next time you see a young person take a handicapped spot and walk out of their car like it's nothing - I beg you to not shake your head and think, There are people with real problems who need that spot.  Looks can be deceiving.  

And to all my fellow good-looking troopers, never give up hope.

Bless the LORD, O my soul, 
and forget not all his benefits,
who forgives all your iniquity,
who heals all your diseases,
who redeems your life from the pit...
Psalms 103:2-4a



Saturday, February 14, 2015

My Miracle Minivan

I have never been what anyone would consider a lucky person.  I never win sweepstakes that I sign up for, or even anything inside a cereal box.  My husband and I share this quality, only I would take it a step further and call him just plain unlucky. 

For example, a couple of days before Christmas Ian had gotten off work and was headed to buy a present for our nephew.  Meanwhile, I had only been home from the hospital a day or two and my mom and I were at home, cold compress on my head and painkillers running through my veins.  I had just requested a bowl to retch into when I got a call from Ian.

Me: Did you get the present?
Ian (calmly): I am on my way but I've pulled over at a gas station because the car is smoking.
Me (nauseous and unhappy):  Yikes. Okay well let me know when you're coming home.  

We hung up and I started crying (those pain pills sure make a girl emotional).  We had spent thousands of dollars on car repairs that year, and had yet to receive my hospital bill, and I just didn't want to have one more thing to worry about.  At this point in time, puking ensued. 

I don't know if you've ever had abdominal surgery, but if you have you know that merely coughing and sneezing make you painfully aware of all the muscles that are affected by such bodily functions.  When you're throwing up after surgery...well, you just think that your incision will rip open and spill all the guts that aren't already coming out of your mouth (too graphic?). 

It was at this moment that my phone began to ring again.  My mother graciously answered for me while I threw up. When she left the room during the call, I knew it could only be bad news on top of a terrible night. 

Ian had told her that the old Taurus had gone up in flames.  The fire department was on their way and the Thornton's was being totally evacuated.  And that was that.  (To hear him tell the story is more humorous than melancholy - videos of his car ablaze even circulated Facebook!) 
The day after the fire: the aftermath
We were once again a one car family.  I know it is possible to function as such, as we've done it before, but when both spouses work and you've got a child it is very difficult.  To me, things couldn't get worse.  Of course this would happen to us at this time. But really God, do you just love picking on us? 

Our good family friend who had found my Honda began a hunt for another car that we could plausibly buy.  Every day I was burdened by the thought of the thousands of dollars for this "new" car that would render us basically broke. 

Weeks passed and our friend was not finding a car, which was a bit unusual he told me.  Something should have turned up by now.  I posted a status on Facebook seeing if anyone knew of a "steal" that Ian and could purchase.  That very night I received this message:

Hey Savannah.  Saw your post about looking for another car.  We just got a replacement van and hadn't decided what to do with the other van yet.  It's a 2004 Nissan Quest with a few miles and few minor things but it runs good and never gave us any major trouble.  By next weekend if you want it and are interested in it, it's yours.

I immediately started bawling, and not because of the painkillers.  Two weeks later, I had a minivan that I didn't deserve or dream of affording in years (I mean, the thing has a DVD player!  And seat warmers!!!) Their generosity is miraculous and evidence of God's merciful provision. 
Minivan Momma!!
To quote Michael Scott from the Office: "It goes to show that everything you want in life you get.  And you can't work for it.  It just comes to you."

...I'M KIDDING, PEOPLE! (We do work very hard, by the way.)

All of this to say, God's timing is perfect.  His provision is perfect.  And yes, He was picking on us.

For the eyes of the Lord are on the righteous,
and his ears are open to their prayer.
1 Peter 3:12
My baby napping in the van he will grow up in!  (Look at all that SPACE!)

Sunday, December 14, 2014

The To-Do List

 As my surgery quickly approaches, I feel this nagging desire to get as much done as possible beforehand - you know, before the pain, before my mind is dulled by the medicines to treat the pain, before I find myself on the long road to recovery.  I need to get all the Christmas presents ready; oh I better reorganize my kitchen while I'm at it; I better cook this pork before it goes bad; and the all important: I need to watch all my favorite Christmas movies!!!!!  Most of the things on my before-surgery to-do list are pretty inane.  But there is one task I have found sobering: drawing up a living will.

Don't get me wrong, the odds are with me as far as making it out of this surgery fine goes.  It will take about four hours, an incision will be made and things will be taken out of me, sliced off of me, sewn up and more.  It's not small potatoes, but it's not much of a gamble either.  It's serious enough, however, that I thought I better give some directions on what I want done in the event that something does go wrong. (Resuscitate? Intubate? Etcetera.)  Basically, it gets you thinking about your own mortality.

I wrote in my last post about my training for a 5k before my proctocolectomy.  Well, that race was today.  Ian and I registered, had our trackers on, got our t-shirts and were fully ready to jog (walk...) all around Iroquois Park.  Five minutes before the race, however I got a text: my uncle had died unexpectedly the night before.

Uncle Gale was an amazing man: he embodied godliness and joy, he was always laughing and always praying.  He had a God-given talent for music and his prayers - oh his prayers, I believe they carried enormous weight.  He has been a prayer warrior for me since I was little and diagnosed with Crohn's, into my teenage and young adult years when I was making dumb decisions, and for my parents as they moved across the world.

I was in shock.  I started weeping and knew I could mentally not do this race.  As Ian and I headed back home, I frantically tried to remember the last time I saw Uncle Gale, hoping that it might have made for a good final time together.  My husband reminded me gently that the last time I saw him, and the first and only time Ian got to meet Uncle Gale, was for dinner before we all went to the Billy Joel concert.  I had no idea that would be goodbye, and for many that is just how the final goodbye is. 

All of this to say, my pre-op to-do list has changed.  I need to show my husband how much I love him; I need to play with my son until we're both exhausted; I need to focus on the eternal. No matter how cliche, you truly never know when your time is up or when your time with a loved one is up.  I hope to keep this as my forever to-do list, even after my surgery is done and I am recovered. I am thankful to Uncle Gale for his taste for life, his prayers, and for this reminder to soak it all in as this life is fleeting. "Soon we all will be together."


When I awake, I will see you face to face and be satisfied.
Psalms 17:15b 

Monday, November 10, 2014

Unraveling

After a two hour drive, the hubby and I have arrived in Indianapolis for our much-needed getaway night. There's just one problem: I look down and my bowels are coming out of my stoma - my ileostomy has prolapsed.  A frantic call to the doctor and we are headed straight back to UofL's emergency room.  I am unraveling in both an all-too literal and figurative way.

My stoma generally sticks an inch out of my belly at the most, but I've got six inches pouring out of my abdomen.  It's kind of unsettling to see and it's accompanied with intense abdominal pains.  They think I'll need to be whisked away to surgery in the morning, but thankfully, by then my stoma has swallowed the intestines back in (the human body is nuts. That's the only word for it.) and has reached its normal size. 

I'll spare you the nitty gritty of it and just say this: two nights in the hospital and one ileoscopy later, I tell my doctors it's time to part ways with my colon; it's time to get the surgery that will make my ileostomy irreversible. 


I get asked all the time if I want to reverse my stoma and go back to having my bag-free belly.  Heck no, people! Why would I ever want to go back to running to the bathroom twenty (or more) times a day, never quite knowing if I'm going to make it, and sometimes not?  No, thank you.  I'll take pooping in a bag any day.  So, it's scheduled.  December 17th will bring another life-changing surgery, although with this one there's no going back. 

In light of the long recovery time ahead, I have made the executive decision to "get fit" beforehand.  I might be skinny, but let me tell you, I get winded walking from one side of the food court to the other.  And that is not conducive to a speedy recovery!

So, three days before my surgery will be another life changer: my first 5k.  I might be crazy.  My brain might be unraveling, too. I started training today, power walking for twenty minutes through the park with Dash, running intermittently for 45 seconds.  It was kind of miserable.  Pathetic, I know. 

While I'd love to become one of those annoying running addicts, the main goal is to get this temple as healthy as can be pre-surgery so post-op is smooth. If I end up enjoying running in the meantime, so be it (although at this point, I don't foresee that happening!).

My journey to health and - good heavens - FITNESS begins today! Any tips for a first time (non) runner are welcome.   
"Why are you still walking? The playground is back there"